Patrick Bateman Posted October 31, 2023 Share Posted October 31, 2023 Hey all, was wondering if anyone in here has had a major organ transplant as it would be good to speak to someone who’s gone through something I’m about to go through. Last August I developed blood clots in my liver central vein that essentially killed it with no hope of it recovering. Been managing with a lot of meds and doctors visits since then but It’s looking like I’m moving up the list and can be getting a new liver sometime within the next 6 months so yea if anyone has gone through something similar I would love to chat about recovery and life after transplant. 7 Link to comment Share on other sites More sharing options...
Phil Posted October 31, 2023 Share Posted October 31, 2023 I can't say I've gone through similar, but I'm really sorry to hear that. Really hope you get one and things pick up for you! 1 Link to comment Share on other sites More sharing options...
siddious Posted October 31, 2023 Share Posted October 31, 2023 Wow dude I am really sorry to hear that you are going through all of this. I also have no experience but I hope everything works out and works out quickly. Link to comment Share on other sites More sharing options...
Patrick Bateman Posted November 1, 2023 Author Share Posted November 1, 2023 Thanks guys. Got a super strong support system over here and am with great doctors, so I’ll definitely be good 1 1 Link to comment Share on other sites More sharing options...
Keirik Posted November 1, 2023 Share Posted November 1, 2023 Sending lots of love, well wishes, and love from this end of the computer. 1 Link to comment Share on other sites More sharing options...
Ozzy Posted November 1, 2023 Share Posted November 1, 2023 3 hours ago, Patrick Bateman said: Thanks guys. Got a super strong support system over here and am with great doctors, so I’ll definitely be good Hey PB!! Hang tough my man!!! All my best is with you, dude!!! 1 Link to comment Share on other sites More sharing options...
Shane Falco Posted November 1, 2023 Share Posted November 1, 2023 8 hours ago, Patrick Bateman said: Hey all, was wondering if anyone in here has had a major organ transplant as it would be good to speak to someone who’s gone through something I’m about to go through. Last August I developed blood clots in my liver central vein that essentially killed it with no hope of it recovering. Been managing with a lot of meds and doctors visits since then but It’s looking like I’m moving up the list and can be getting a new liver sometime within the next 6 months so yea if anyone has gone through something similar I would love to chat about recovery and life after transplant. Not me, but one of my closest friends had a kidney transplant. His quality of life increased a great deal after the procedure for numerous reasons. Dialysis took a huge toll on his body and he was pretty much fed up with it when he recieved the call. Off the top of my head the most challenging part has been the side effects from the immunosuppressants he has to take. There are also certain physical activities he's had to give up or really dial down (was an avid climber) but he's adapted. Some weight gain and a little hair loss are also things he's learning to manage. If you have any particular questions you'd like to ask him, I can take it to him and get back to you. I'm glad to hear you've got a good support system around you (really important) You've got this, dude. Keep us posted. 2 Link to comment Share on other sites More sharing options...
The Dude Posted November 1, 2023 Share Posted November 1, 2023 Sorry to hear this man. Hope all goes well and you get a kidney soon. Good luck sir. 1 Link to comment Share on other sites More sharing options...
Pete Posted November 1, 2023 Share Posted November 1, 2023 Good luck dude. Glad you're gonna be OK. 1 Link to comment Share on other sites More sharing options...
Albatrosss Posted November 1, 2023 Share Posted November 1, 2023 Good luck, Jimmy. Cant wait to see you posting again when you’re all healthy. Keep us updated. 1 1 Link to comment Share on other sites More sharing options...
Patrick Bateman Posted November 1, 2023 Author Share Posted November 1, 2023 10 hours ago, Shane Falco said: Not me, but one of my closest friends had a kidney transplant. His quality of life increased a great deal after the procedure for numerous reasons. Dialysis took a huge toll on his body and he was pretty much fed up with it when he recieved the call. Off the top of my head the most challenging part has been the side effects from the immunosuppressants he has to take. There are also certain physical activities he's had to give up or really dial down (was an avid climber) but he's adapted. Some weight gain and a little hair loss are also things he's learning to manage. If you have any particular questions you'd like to ask him, I can take it to him and get back to you. I'm glad to hear you've got a good support system around you (really important) You've got this, dude. Keep us posted. Thanks! Yea a lifetime of immunosuppressants is definitely not ideal but way better than dealing with the ups and downs from day to dat y that come with a non functioning organ. I’d be curious to hear about time it took to feel back to their old self pre diagnosis. I know everyones different but it would be great to know if its months or years Link to comment Share on other sites More sharing options...
Scott Posted November 6, 2023 Share Posted November 6, 2023 Wishing you nothing but the best and I hope you regain and good amount of quality of life going forward. Will be thinking about you as you successfully continue through the process. 1 Link to comment Share on other sites More sharing options...
Shane Falco Posted November 6, 2023 Share Posted November 6, 2023 On 11/1/2023 at 10:17 AM, Patrick Bateman said: Thanks! Yea a lifetime of immunosuppressants is definitely not ideal but way better than dealing with the ups and downs from day to dat y that come with a non functioning organ. I’d be curious to hear about time it took to feel back to their old self pre diagnosis. I know everyones different but it would be great to know if its months or years I asked him about this and he said it took him about a year to feel grounded after the adjustments in routine/lifestyle. The first 6 months were the most challenging because he had to stay on top of his meds and look out for specific things just in case. He mentioned that it was difficult at times to remember he had to take it easy for a while. He’s a pretty active guy so slowing down was an adjustment. But yeah, he said a year. To get into the flow of “a new way of living.” 1 Link to comment Share on other sites More sharing options...
phillyb Posted November 6, 2023 Share Posted November 6, 2023 I got nothing to offer except good wishes. Hoping for the best for you. 2 Link to comment Share on other sites More sharing options...
Patrick Bateman Posted November 9, 2023 Author Share Posted November 9, 2023 On 11/6/2023 at 3:17 PM, Shane Falco said: I asked him about this and he said it took him about a year to feel grounded after the adjustments in routine/lifestyle. The first 6 months were the most challenging because he had to stay on top of his meds and look out for specific things just in case. He mentioned that it was difficult at times to remember he had to take it easy for a while. He’s a pretty active guy so slowing down was an adjustment. But yeah, he said a year. To get into the flow of “a new way of living.” Thanks man, i really appreciate this 1 Link to comment Share on other sites More sharing options...
Patrick Bateman Posted March 9 Author Share Posted March 9 Transplant kicked my ass, just now getting my motor function back from December surgery. Amandas been my hero thru this 5 3 7 1 Link to comment Share on other sites More sharing options...
jsm7302 Posted March 11 Share Posted March 11 On 3/9/2024 at 12:23 PM, Patrick Bateman said: Transplant kicked my ass, just now getting my motor function back from December surgery. Amandas been my hero thru this God bless; happy to see you on the better side of it!! Link to comment Share on other sites More sharing options...
Keirik Posted March 12 Share Posted March 12 On 3/9/2024 at 12:23 PM, Patrick Bateman said: Transplant kicked my ass, just now getting my motor function back from December surgery. Amandas been my hero thru this We are all just so happy you're still here Link to comment Share on other sites More sharing options...
Dunny Posted March 12 Share Posted March 12 All the best Jimmy. Was hoping we'd see an update so thanks for that. It's going to be fun as we all get old together, here. Link to comment Share on other sites More sharing options...
siddious Posted March 12 Share Posted March 12 On 3/9/2024 at 12:23 PM, Patrick Bateman said: Transplant kicked my ass, just now getting my motor function back from December surgery. Amandas been my hero thru this Link to comment Share on other sites More sharing options...
Albatrosss Posted March 12 Share Posted March 12 5 hours ago, Dunny said: All the best Jimmy. Was hoping we'd see an update so thanks for that. It's going to be fun as we all get old together, here. this post is depressing. Link to comment Share on other sites More sharing options...
Rizz GAWD Lav No Cap FrFr Posted April 12 Share Posted April 12 On 3/9/2024 at 12:23 PM, Patrick Bateman said: Transplant kicked my ass, just now getting my motor function back from December surgery. Amandas been my hero thru this Dude, I never come on here and I’m so sorry I missed this. I would’ve reached out with my aunts experience, but that doesn’t matter now. I’m so glad you’re recovering, you and Amanda are fucking warriors and deserve all of the credit in the world. Keep going, we are all behind you and here for anything you need. 1 Link to comment Share on other sites More sharing options...
Patrick Bateman Posted April 13 Author Share Posted April 13 Thanks man. The transplant part was not too bad, i would be fully back if just that. I got a nasty brain injury directly after which made recovery so much longer. Im finally walking with no help tho really appreciate the well wishes 3 5 Link to comment Share on other sites More sharing options...
Keirik Posted April 18 Share Posted April 18 On 4/13/2024 at 10:44 AM, Patrick Bateman said: Thanks man. The transplant part was not too bad, i would be fully back if just that. I got a nasty brain injury directly after which made recovery so much longer. Im finally walking with no help tho really appreciate the well wishes Thought of you the other day. I'm just glad you're here my man. 1 Link to comment Share on other sites More sharing options...
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